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Published 15:44 31 Jul 2022 BST
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Barts Health NHS Trust said in the note to Archie's parents, Hollie and Paul, that 'all fluid infusions, medications, including vasopressin will be stopped' at 2pm on August 1."
The note also states that only immediate family will be allowed into the room to spend time with Archie as his treatment comes to a halt, and other family members will be banned.The letter - which was given to MailOnline with permission of the Battersbee family - also reveals that a doctor will need to 'assess Archie regularly to confirm that the heart has stopped beating'.
The Daily Mail reveals that one of Archie's aunts had been booked on a flight to come over from Italy to see him – but will now no longer be able to under the Trust's rules.
This letter, which was sent to the Battersbee family despite the UN urging a pause on proceedings, was naturally met with devastation and anger, both from Archie's family and also many who has been following the family's fight to keep their son alive.
"The Trust has been dragging us as a family through the courts at a breakneck speed from April 27 till the final decision of the Supreme Court this Thursday evening," a statement from Hollie and Paul said: '
'The Trust has never made any attempt to agree any sort of compromise with us on any matters great or small. For example this Friday, our lawyers received a letter from the Trust demanding that all videos of Archie and his medical equipment taken on the ward, which we believe is evidence of improvement in Archie’s condition (such as his attempts to breathe independently) are immediately deleted; and threatened legal proceedings for an alleged breach of data protection.
'We as a family are very disappointed that the Trust’s management has chosen to hide behind euphemisms and to mislead the public. It is hard to see any reason for that behaviour except knowing that what they are doing is cruel and wrong.'
The letter, which was sent over the weekend, also read: 'We understand that any discussions around the withdrawal of Archie's treatment are very difficult and painful.
'However, we want to ensure that you and your family are involved as much as you wish to be.'
According to the note, Archie's parents will be told on Monday morning how the withdrawal process is to be performed, with the aim to 'preserve Archie's dignity', the letter read.
It went on: 'You or any of the family may wish to lie on Archie's bed with him or have him in your arms, if that should be practically possible.'
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